Times Like These

John's laying on the floor using his chest percussor. He's already done his right side and coughed up a whole lot of BLECH. Now he's working on his left side.  He has a chest therapy vest to use too, it just doesn't do the same job. For the most part, day to day, his CF just blends into our lives. Digestive Enzymes here, breathing treatment there. When he gets sick, it sticks out like a sore thumb. A sinus infection to him is like the flu to anyone else. A simple sinus infection. It's times like these I snap back to the reality of our life and living with Cystic Fibrosis. As he nears the median age of survival with CF, I can't help but wonder what our future holds. That's 37 by the way. He's 32. I know it stresses him out worrying about what will happen to his family when something happens to him. It's harder for him to put out of his mind since he is the one living with it every day. Each time he has a coughing spell or his asthma is bothering him. Each time he takes a pill or breathing treatment. How could it not be on your mind?

Shelby and John on Father's Day.

John using his chest percussor

We love him very much.  We've been more lucky than most.  I hope we continue to be lucky.